National Breast Cancer Coalition

Call to Action Online - June 2015

NBCC Presents at International Conference on Open Research


Longtime NBCC advocate Naz Sykes represented NBCC at the Sage Bionetworks' 2015 Assembly in April at the Institut Pasteur in Paris.

Sage Bionetworks is a non-profit research organization dedicated to shifting the creation and use of scientific research to an open collaboration model so that breakthroughs come faster and patients live longer. Their invitation-only assemblies bring together leaders in academia, technology, government and more to advance open collaboration and discovery. The theme of this year's assembly was "Connecting Open Research, Open Education and Open Social Impact."

Naz spoke on the Open Innovation and Social Impact panel, where she shared the groundbreaking progress we've made in scientific collaboration through the Artemis Project® and how it is changing the way research is done.

Other attendees came from such esteemed institutions as UNESCO and The World Bank. Jessica Jackley, co-founder of the microlending website Kiva, and William Drayton, founder and chair of ASHOKA, Innovators for the Public, delivered the keynote address.


Advocate Voices Make a Splash in "Cancer: The Emperor of All Maladies"


Viewers like you watched Ken Burns' highly-anticipated documentary, "Cancer: The Emperor of All Maladies" across the country when it premiered on PBS at the end of March. As the only patient advocacy group in the film, we are extremely proud that four of our leaders and partners were featured:

  • NBCC President Fran Visco
  • Board member Anne Grant of SHARE Cancer Support
  • Dr. Susan Love of the Dr. Susan Love Research Foundation: one of the founding advocates of NBCC, a steadfast supporter of our mission and valued contributor to the Artemis Project®
  • Dr. Dennis Slamon, UCLA researcher: credited with the development of Herceptin (trastuzumab), which received early support from the CDMRP DOD Breast Cancer Research Program. NBCC advocate involvement was key to the success of the pivotal trial of Herceptin.


2015 Summit Highlights


The 2015 Advocate Leadership Summit was a great success! Many participants said it was the best one yet! There were phenomenal plenaries and great workshops, and attendees converged on Capitol Hill to generate more support for NBCC's Legislative Priorities.
 
Below are some highlights:

Fran Visco, NBCC President, shared a keynote address on the midpoint of Breast Cancer Deadline 2020®. She provided her assessment of how far we have come and a strong message on why it is time now to move ahead with more urgency.

Attendees joined Dr. Susan Love, Dr. Aled Edwards, Dr. Stuart Martin, Dr. H. Kim Lyerly and Dr. Steve Shak for intimate and broad-ranging discussions in an informal setting.

What can other vaccine discoveries teach us about a preventive breast cancer vaccine? Participants heard from the architect of the cervical cancer vaccine, Dr. John Schiller, and learned the ongoing story behind the development of the Ebola vaccine from Dr. Barney Graham.

Attendees brainstormed about ways to make Beautiful Trouble! Nadine Bloch, contributor to the book Beautiful Trouble and longtime social activist, shared ways advocates can be disruptive innovators for social change. We channeled that energy into a social media activity creating messages that coincided
with the theme #breastcancerisgoingdown.

Lobby Day once again was a great success! Nearly 200 NBCC advocates took to Capitol Hill moving from House to Senate offices to meet with Members and staff and urge support for Breast Cancer Deadline 2020® and our legislative agenda. Over 300 meetings were held during our annual advocacy day, and resulted in significant increases in cosponsors for our #1 legislative priority, The Accelerating the End of Breast Cancer Act, S.746/H.R.1197.


NBCC in the News


Fran Visco in the New York Times


Fran Visco wrote a powerful Letter to the Editor in April 3rd's New York Times about the issue with today's cancer research status quo. Read it here and share it with your friends.

Fran Visco in USA Today

Fran wrote an article in April 23rd's USA Today about difficult breast cancer decisions. Read it here and share it with your friends.


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