National Breast Cancer Coalition

Call To Action Online February 2019

NBCC 2019 Legislative and Public Policy Priorities 

Breast cancer is a political issue. Every aspect of breast cancer is touched by public policy. Since NBCC’s inception in 1991, we have been the leading political activists on breast cancer. From increasing the amount of breast cancer research funding to ensuring better access to treatment, NBCC has successfully challenged our federal officials to play a role in ending breast cancer.

Each year, NBCC’s grassroots Board of Directors—which represents organizations that reflect the diversity of breast cancer—with input from our membership, determines our legislative and public policy priorities for the coming year. Policymakers are then held accountable for how they vote and govern with regard to these priorities.

The 2019 priorities are:

Legislative Priorities 

PRIORITY #1:

$150 Million for the Department of Defense (DOD) Breast Cancer Research Program (BCRP) for FY2020: As a result of NBCC’s grassroots advocacy, the DOD BCRP was created in 1992 to “eradicate breast cancer by funding innovative, high-impact research through a partnership of scientists and consumers.” The DOD BCRP is widely viewed as an innovative, unique, and efficient medical research model which has proven to be accountable to the public and has produced extraordinary results. NBCC seeks continued funding for this successful program.

PRIORITY #2:

Metastatic Breast Cancer Access to Care Act: A bill to waive the 24 month waiting period for Medicare eligibility and the 5 month waiting period for Social Security Disability Insurance benefits for individuals with Metastatic Breast Cancer.

PRIORITY #3:

Preservation of the Medicaid Breast and Cervical Cancer Treatment Program: Congress enacted the Breast and Cervical Cancer Treatment Act in 2000 after years of NBCC grassroots lobbying and influence. NBCC remains committed to ensuring all women and men screened and diagnosed with breast cancer through federal screening programs have access to the treatment they need.

Public Policy Priorities

PRIORITY #1:

Guaranteed Access to Quality Care for All: Ensuring access to quality, evidence-based health care has been a top priority of NBCC for many years. Prior to the passage of the Affordable Care Act (ACA), the NBCC grassroots Board of Directors approved a Framework for a Health Care System Guaranteeing Access to Quality Health Care for All which built on NBCC’s Principles for Quality Care. In 2010, NBCC endorsed and advocated for the passage and implementation of the ACA which marked important steps forward in access to quality health care for individuals with, and at risk of, breast cancer. The Coalition opposes and will work to defeat any and all efforts to repeal the ACA or replace it with something less expansive.

PRIORITY #2:

Ensuring the Participation of Educated Patient Advocates in Science Research and all Levels of Health Care Decision Making: NBCC continues to work to ensure that educated patient advocates who represent a constituency, have a meaningful “seat at the table” in all levels of health care decision making which affects their lives.

In the coming months, we will be asking you to take action to move these priorities forward. If you are not already a member of our National Action Network, you can sign up here.

Science Spotlight

2019 PROJECT LEAD® INSTITUTE Applications – Share This Announcement With Your Networks!

 

NBCC will be accepting applications for only 6 more weeks for its 2019 Project LEAD Institute.

 

The Project LEAD Institute, will be held this year on July 14 – 19 in La Jolla, CA. Selected advocates will participate in-depth education on the complex science of breast cancer, as well as topics such as research methodology and clinical trial design, by renowned expert faculty.


With our new rolling admissions process, spaces are filling up. So don’t wait. Spread the word to your networks and encourage those interested to apply.

  • Final Deadline for Applications: April 19th, 2019, 5pm EST

For more information on the Project LEAD Institute and how to apply, visit our website.

For questions? Please email ProjectLEAD@BreastCancerDeadline2020.org.

2019 SUMMIT Countdown – Two Months and Counting! Spread the Word!

Join approximately 150 other devoted breast cancer advocate leaders from across the country to hear from leading scientists, advocate visionaries, and your peers for networking, coaching, seminars, and interactive workshops.

This year’s summit includes a number of exciting plenary sessions as well as numerous 60-min seminars and workshops. In addition, we will be offering Project LEAD grads a special pre-conference workshop on Saturday, April 27th titled “Awakening Dormant Tumor Cells.”

This session, which is being led by DoD/BCRP Era of Hope Scholar, Dr. Mikala Egeblad, from Cold Spring Harbor Laboratory, will highlight the relationship between chronic inflammation and the metastatic recurrence of breast cancer. In particular, this session will explore the role of neutrophils, a specific type of immune cell, in the awakening of dormant cancer cells. Neutrophils can form neutrophil extracellular traps (NETs) as part of the body's reaction to inflammation. By targeting NETs, we may be able to prevent cancer recurrence.

Visit our website to preview the great program agenda we have lined up! We hope to see you there.

More details about the event:

  • WHEN: Saturday April 27 – Monday April 29, 2019
  • LOBBY DAY on Capitol Hill: Tuesday April 30
  • WHERE: Renaissance Capital View Hotel in Arlington, VA

Register today or set up a Deadline Champions fundraising page to support NBCC’s mission to end breast cancer, and earn benefits as you progress—such as Summit registration and/or hotel stay!

For those of you who are participating in our Deadline Champions fundraising activity, we have prepared a useful Fundraising Guide to help you make the most of your activities. This resource provides a wealth of tips and helpful strategies for reaching your fundraising goal!

Join NBCC for Women with Balls® event in NYC!

NYC Women with Balls® bowling fundraiser will be held at the Bowlmor Lanes Times Square on May 7, 2019.  This is a great event that brings together like-minded, compassionate and energetic women and men to raise money, bowl and have fun – all for a really wonderful cause.  T-shirts will be provided, and you can enjoy food, drinks and prizes.

There are three ways you can participate:
1. Teams of 8 bowlers raise a minimum of $3,600 to play and will receive a private lane. 
2. Teams of 4 bowlers must a raise minimum of $1,800 to play.
3. Individuals who raise a minimum of $450 will be paired with a team.

Interested in being a 2019 Women with Balls® Event Sponsor?
Download information to learn more!

For more information and to register your team, go to: https://womenwithballs.blackbaud-sites.com/nyc . If you are unable to attend and wish to donate, contact Sharnita Goins at 202-973-0569 or SGoins@breastcancerdeadline2020.org.

Supporting Our Mission

In 2019, you can become a member of NBCC’s the President’s Council!  A gift of $1,000 or more entitles you to membership in this group with special benefits. Members receive regular communications directly from NBCC’s President, Fran Visco, on current breast cancer issues, recognition in publications, and invitations to special webinars and events.

Recurring donations are the backbone of NBCC’s work. These donations allow NBCC to plan strategic public policy initiatives and innovative research projects all with a goal of ending breast cancer.

When you support NBCC, you ensure the National Breast Cancer Coalition continues to bring experts and visionaries together to reframe the approach to science and research and develop policies to focus on ending breast cancer and saving lives.

For more information or to pledge your support, visit www.breastcancerdeadline2020.org or contact Judy Taylor, Chief Advancement Officer, jtaylor@BreastCancerDeadline2020.org or 202.973.0594.