National Breast Cancer Coalition

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Lobby Day Hotel & Travel Getting There Arlington, VA & Washington, DC Things To Do

Building Leaders at the Inaugural Advocate Leadership Summit - Join Us!

In 2013, our Breast Cancer Deadline 2020® efforts are focused on building leadership at all levels. To strengthen our grassroots leadership across the country, we will convene a completely unique summit of leaders this year. Join us at the Inaugural Advocate Leadership Summit in Washington DC, May 4-6, 2013. This meeting will provide attendees with life-long leadership skills and just-in-time strategies as well as Big Ideas and advanced learning. Leaders also will experience small group interactions with researchers and thought leaders.

Attendance will be capped at 250. Registration for the Summit is open to all advocates who commit to playing a leadership role and raising $1,000 or more in support of the research and mobilization work of Breast Cancer Deadline 2020®. There are no additional registration fees for the summit, and the fund raising contribution entitles the participant to three nights of shared lodging at the Summit hotel.

A deadline changes everything.

Each Advocate who attends will be taking the next big leap forward by becoming committed as an NBCC Breast Cancer Deadline 2020® leader! The deadline truly does change everything. It must for us to succeed.

We need advocates to help to grow our base of support to include everyone who cares about ending breast cancer. By getting more and more members of your community behind our effort through your leadership and fundraising efforts, we will be able to continue our work on the Artemis Projects® to develop a breast cancer vaccine and other research collaborations on the causes and prevention of metastasis, and our unparalleled advocate education and training programs.

We need you to commit NOW to joining us for this historic event―space is limited!

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Get Started Now!

The first step is to visit and create a personal fundraising page TODAY. Creating a personal page is your way of registering. Register now and we can reserve your place at the Inaugural Advocate Leadership Summit; you must commit to attending by March 31, 2013 but may continue working toward your fundraising goal through May 4, 2013.

We have prepared all of the technical and creative support you need, including sample email letters to solicit support, template language for your webpage, and simple ways to add photos. Whether you solicit contributions from your network, have your organization donate the cost, or contribute on your own, to register you must create your web page today.

If you need assistance or have additional questions, please contact NBCC at We are seeking leaders ready to commit to working on this all-important mission throughout 2013-14 and beyond, so please register now.

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What You Will Learn

The Inaugural Advocate Leadership Summit will provide a gathering for advocates like you to listen, learn and engage in transforming ideas into actions you can spread throughout your communities across the country and around the world. The 2013 program will provide opportunities for you to:

  • Network with the most highly committed and motivated group of leaders ever assembled in the world of breast cancer
  • Interact with scientists, thought leaders and innovators in small, intimate groups
  • Hear about innovative research and learn about progress in prevention and metastasis research
  • Understand the post-election White House and Congress in preparation for Lobby Day
  • Develop life-long leadership skills
Join advocates at NBCC's 2013 Inaugural Advocate Leadership Summit and be part of the historical movement that ends breast cancer by 2020.

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About the Leadership Summit Program

While we continue to fine-tune and design an intensive, thought-provoking program for our leaders, we have some sessions already in place to give you a sneak preview of what’s to come. Please check back regularly for updates.

Program updated as of April 17, 2013

Saturday, May 4, 2013  

11:00 a.m. – 12:30 p.m.

SPECIAL EVENT! Lobby Day Briefing
If you can’t attend the Inaugural Advocate Leadership Summit, you are encouraged to attend NBCC’s 2013 Lobby Day.
Learn more about Lobby Day.

1:00 p.m.  –  2:30 p.m.

SPECIAL EVENT! Project LEAD® Advanced Topics
Mouse Models: What Can They Really Tell Us About Human Biology?

For decades, mice have been the animal model of choice in the study of human diseases. But questions have been raised about how well mouse model study results translate to human biology. Most recently, these questions have been raised in the areas of sepsis, burns and trauma. How do these questions relate to the use of mouse models in understanding the immune system and other systems that relate to breast cancer research?
SPEAKERS: H. Shaw Warren, H. Kim Lyerly
MODERATOR: Kay Dickersin

4:00 p.m.

Opening of the Inaugural Advocate Leadership Summit

4:00 p.m. – 4:15 p.m.

Welcome, Moment of Silence

4:15 p.m. – 4:25 p.m.

Opening Video, Introduction of Fran Visco

4:30 p.m. – 5:15 p.m.

President’s Address
Fran Visco will address the purpose of the Inaugural Advocate Leadership Summit and provide an overview of the central role grassroots advocate leadership will play in Breast Cancer Deadline 2020®. She will report on the many exciting developments of the past year and outline the need for grassroots actions in the year ahead.

5:15 p.m. – 5:45 p.m.

SPECIAL EVENT! Poster Session Presentations
Five presentations, 5-7 minutes each
Hear several short presentations by advocates on the effective work they have done to promote Breast Cancer Deadline 2020® in their communities.

5:45 p.m. – 6:30 p.m.

SPECIAL EVENT! Welcome Reception
Participate in the Poster session reception with refreshments to continue the festive opening day of the Inaugural Advocate Leadership Summit.

6:30 p.m. –7:30 p.m.

Celebration of Life: Chris Brunswick

Sunday, May 5, 2013  
7:00 a.m. – 8:00 a.m.


8:00 a.m. – 8:15 a.m.

Welcome, Moment of Silence

8:15 a.m. – 9:30 a.m.

The Breast Cancer World in 2013: Where are we Now?
Hear an analysis of where we are today and the vision for where we need to be in breast cancer. Understand the reality behind the numbers, what’s changed in treatment and clinical trials, and whether prevention is finally becoming a focus.
SPEAKERS: Dennis Slamon, Susan Love, Silvia Formenti, Laura Nikolaides

9:30 a.m. – 9:45 a.m.


9:45 a.m. – 11:15 a.m.

Breast Cancer Deadline 2020® Research, Progress and Big Ideas
Given where we are now, does a focus on prevention of breast cancer and stopping metastasis hold potential for ending breast cancer? What recent progress has been made in those areas? What are the new emerging ideas are emerging that have potential to overcome barriers to the goal?
SPEAKERS: Brunie Felding, H. Kim Lyerly, Peter Lee, Keith Knutson

11:15 a.m. – 11:30 a.m.


11:30 a.m. – 12:30 p.m.

Advocate/Researcher Meet-Up
Brunie Felding, Silvia Formenti, Suzanne Fuqua, Keith Knutson, Peter Lee, Susan Love, H. Kim Lyerly, Dennis Slamon
ADVOCATE FACILITATORS: Amy Bonoff, Beth Emery, Ann Fonfa, Judi Hirshfield-Bartek, Shirley Mertz, Chris Norton, Michele Rakoff, Joy Simha

12:30 p.m. – 2:00 p.m.

Membership Lunch and Keynote Address
SPEAKERS: Marlene McCarthy, Fran Visco
RECOGNITION: Carolyn Clancy
KEYNOTE SPEAKER: Maria Echaveste

2:15 p.m. – 4:00 p.m.

Achieving the Mission: Messaging and Moving Mountains
A two part session that addresses two key questions: What does it take to accomplish a transformational mission and get innovative and unconventional ideas past an entrenched establishment and a broken system? And how can we effectively articulate a vision to a variety of key auidiences with dramatic and powerful results to achieve a big goal?
SPEAKERS: Daniel Sarewitz, Michael Sheehan
MODERATOR: Cindy Pearson

4:00 p.m. – 4:15 p.m.


4:15 p.m. – 5:45 p.m.

Skill Building Workshops
  1. Effective Research Advocacy: Has Advocacy Lost Its Power?
    The term "advocate" is used everywhere and everyone is doing "patient engagement." What does effective research advocacy look like in 2013? Is NBCC’s definition of advocacy still relevant and will it accomplish the systems change we seek? Discuss ways to bring a true activist perspective to your interactions with the scientific community, with industry and the healthcare world that will really make a difference in breast cancer. Do we need to recapture the power of advocacy?
    Musa Mayer, Gayle Vaday
    MODERATOR: Michele Rakoff
  2. Political Advocacy 201
    Learn to be effective in promoting Breast Cancer Deadline 2020® and the Accelerating Breast Cancer Act on Capitol Hill and in your State Legislature. This workshop will combine strategies for effective lobbying with a specific focus on how to best advocate for this legislative priority.  Hear examples of what works and doesn’t work in meetings and other best practices.
    Kevin Brennan (invited), Dana Richter, Christine Carpenter
  3. Social Activism and Team Building
    Learn how to mobilize and ignite your group or organization to accomplish the grassroots community work that needs to be done. What’s working today in social media, presentation skills, keeping people motivated and believing in a cause? Raise our voices and raise dollars – how can we comfortably do both?
    Michael Cervino
    MODERATOR: Stacy Gagas
  4. From Elevators to the Halls of Congress: Communicating Effectively
    From full length presentations, to an opportunistic elevator talk, learn how to tailor your message to the audience and make the most of the chance you have to tell the Breast Cancer Deadline 2020® story. Experience a hands-on workshop on communicating effectively in a variety of forums before many different audiences.
    Christine Jahnke
    MODERATOR: Beth Emery
5:45 p.m.

Leadership Summit Group Photograph
Meet in the Atrium to record this historic gathering.
Monday,  May 6, 2013  
7:00 a.m. – 8:00 a.m.

8:00 a.m. – 8:15 a.m.

Welcome, Moment of Silence

8:15 a.m. – 9:30 a.m.

Women as Leaders: On Capitol Hill, in the Administration, and Around the World
This politics plenary will focus specifically on the continuing rise of women in leadership in Congress, the Executive Branch and the international community. Has this impacted the way people in Washington, the United States, and the world think about leadership and the role of women? What we can learn from these leaders and how can NBCC advocates apply these lessons to our own work?
Stephanie Schriock
MODERATOR: Susan Dentzer
9:30 a.m. – 9:45 a.m.

9:45 a.m. – 10:45 a.m.

The Worldwide Impact of Overdiagnosis and Overtreatment in Breast Cancer
Hear two of the foremost experts on breast cancer screening discuss the impact of over diagnosis and overtreatment from a domestic and a global perspective and the long term implications for public health policy.
SPEAKERS: Barrett Kramer, Michael Baum
MODERATOR: Judi Hirshfield-Bartek
10:45 a.m. – 11:00 a.m.


11:00 a.m. – 12:15 p.m.

Advanced Seminars
  1. Artemis Project®
    It is becoming increasingly clear that the role of the immune system in breast cancer development is a double-edged sword, at times protective, at other times an enabler. NBCC advocates have been partnering with scientists in looking for ways to capitalize on the former as one avenue in meeting Breast Cancer Deadline 2020®. Workshop participants will learn about the paradoxical role of the immune system in breast cancer and hear the latest details on NBCC's mission-driven Artemis Project.
    SPEAKERS: Keith Knutson, Laura Nikolaides
  2. Research on Metastasis
    Is funding for research into the causes and prevention of metastasis gaining momentum? What do we know about the role of tumor dormancy in metastasis and what is the most promising evidence emerging from the research?
    SPEAKERS: Suzanne Fuqua, Shirley Mertz
  3. Breast Cancer Around the World
    Learn about breast cancer trends and differences in incidence and mortality between developing and developed countries. What significance do these differences have for allocation of resources and research focused into causes, prevention and metastasis around the globe?
    SPEAKERS: Olufunmilayo Olopade, Silvia Formenti
    MODERATOR: Kwanele Asante-Shongwe
  4. The Government’s Role in Breast Cancer Deadline 2020®
    Hear an in-depth discussion of the role of the executive and legislative branches in achieving Breast Cancer Deadline 2020®―what they can do, have done, and need to do. Understand the background of the Accelerating the End of Breast Cancer Act, its role in the campaign, and what we learned in the 112th Congress.
    SPEAKERS: Paul Goldberg, Joanne Howes, Dana Richter
  5. Using Social Media to Help End Breast Cancer
    How can we use social media to help change the conversation in a big way? How can we capture the attention of the many stakeholder groups in the overcrowded and noisy breast cancer world with our provocative message? Who is speaking to whom and who is listening? Hear from the cofounder of "DraftObama," an award winning author and "Buzz Czar in netroots organizing" who has created a dynamic network of 1 million activists primarily through viral marketing.
    SPEAKER: John Hlinko
    MODERATOR: Naz Sykes
12:15 p.m. – 1:45 p.m.

SPECIAL EVENT! Lunch and Roundtable Strategy Session

2:00 p.m. – 3:00 p.m.

Advocate/Speaker Meet-Up
These small group conversations are designed to bring together advocates and Summit presenters for informal dialogues on top of mind issues. Whether it is a thorny research dilemma or a follow up to a provocative point made in a plenary, these sessions will allow for the kinds of interactions leaders will find stimulating and insightful.
SPEAKERS: Michael Baum, Silvia Formenti, Suzanne Fuqua, John Hlinko, Keith Knutson, Olufunmilayo Olopade
ADVOCATE FACILITATORS: Kathy Ball, Carol Matyka, Musa Mayer, Nancy Ryan, Sherri Stahl, Naz Sykes

3:15 p.m. – 4:15 p.m.

Strategy Sessions
These small group discussions will focus on developing strategies for the most effective of the prioritized action items identified through the LEADER IDEA Board. Using skills developed over the past three days, advocates will identify the action items that will be their focus for community mobilization for the coming year.

4:30 p.m. – 5:15 p.m. State Delegation Meetings

5:30 p.m. – 6:00 p.m.

Wrap up Session
Join together for Fran’s wrap up of what has been accomplished over these last 3 intense and productive days; what goals we as a group of leaders have committed to achieving in the coming year; and be inspired to bring our work to Capitol Hill on Lobby Day.
SPEAKER: Fran Visco

7:00 p.m. – 9:00 p.m. SPECIAL EVENT! Inaugural Advocate Leadership Summit Closing Reception

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Special Events at the Leadership Summit

Saturday, May 4, 2013  
11:00 a.m. – 12:00 p.m.

Lobby Day Briefing

1:00 p.m. – 3:00 p.m.

Project LEAD® Advanced Topic Session (LEADgrads only)
Join your fellow LEAD graduates for a special advanced topic lecture.

5:30 p.m. – 7:00 p.m.

Summit Opening Poster Session and Welcome Reception
New in 2013, NBCC will host a special advocate poster session to feature grassroots accomplishments in forwarding Breast Cancer Deadline 2020® work in 2012. Join us Saturday, May 4, to feel the energy of top advocate leaders and be inspired by the accomplishments of our grassroots.

Sunday, May 5, 2013  
12:30 p.m. – 2:00 p.m.

Lunch and Keynote Address

Monday, May 6, 2013  

11:30 a.m. – 12:45 p.m.

Advocate/Scientist/Presenters Interactive Session
This is your opportunity to ask the scientists and presenters your questions! You will use assignments provided to you in February/March to form virtual teams and formulate questions for researchers on important topics for Breast Cancer Deadline 2020® (inflammation, biomarkers, clinical trial design, etc.).

12:45 p.m. – 2:00 p.m.

Lunch and Roundtable Strategy Discussions
Working at your lunchtime tables grouped by region, you will begin to work with other advocates on strategies to mobilize your community groups in preparation for the strategy workshops after lunch.

7:00 p.m. – 9:30 p.m.

Inaugural Advocate Leadership Summit Closing Reception
Come ready to party and dance it up with old and new friends. Music, cocktails and dessert provide a fantastic setting to relax, enjoy and prepare for the following day on Capitol Hill.

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Lobby Day

NBCC’s Annual Lobby Day on Capitol Hill will immediately follow the Inaugural Advocate Leadership Summit on Tuesday, May 7. Whether you’ve attended the Inaugural Advocate Leadership Summit or not, all are welcome and encouraged to join this immensely empowering day. We expect busloads of advocates arrive on Capitol Hill prepared and ready to discuss NBCC’s top priorities and urge their representatives to support government actions that will move public policy toward our goal of ending breast cancer.

Lobby Day is open to all who want to participate in this powerful day when hundreds of breast cancer activists make their voices heard. On Lobby Day, our breast cancer advocates will:

  • Urge members of Congress to support and pass the Accelerating the End of Breast Cancer Act, legislation which will help meet the Breast Cancer Deadline 2020® goal;
  • Promote continued funding for the Department of Defense (DOD) Breast Cancer Research Progra.m. (BCRP);
  • Support access to quality health care for all.

Advocates interested in joining NBCC for Lobby Day who are not attending the May 4-6 Inaugural Advocate Leadership Summit are welcome to travel to Washington, DC, to participate.  A special online training webinar will be held in advance to prepare advocates. To register for Lobby Day and the training webinar, click here.

NBCC’s Annual Lobby Day is a cornerstone to NBCC and Breast Cancer Deadline 2020®. We bring our grassroots network of advocates to the doors of the nation’s decision makers, effecting change in public policy and scientific research to carve out the path that will move us towards that goal.

For more information on how to participate in NBCC's Lobby Day, please contact Selena Stanley at or call (202) 973-0560.

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Hotel & Travel

The 2013 Inaugural Advocate Leadership Summit will take place at the Hyatt Regency Crystal City, 2799 Jefferson Davis Highway, Arlington, VA 22202.

Find out more information about travel, hotel, and the local area by clicking below:

How to get to the Summit
Hyatt Regency Crystal City

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Getting There

Closest Airport: Ronald Reagan Washington National Airport (DCA)
Distance: 2 miles from airport
Estimated Taxi Fare: $12.00 USD (one way)
Shuttle Service: Hyatt offers a complimentary shuttle to/from airport every 30 minutes.
Metro (Subway): The hotel is located on the Yellow and Blue Lines – Crystal City Metro Stop.
Metro Fare: $3.15 USD (one way)

Driving Directions:
From DCA:
Follow signs to Crystal City. Take the Rt. 1 South exit and get in the left hand lane. Turn left at first light, 27th Street, the hotel is on the left.

From Dulles International Airport (IAD)
Distance: 28 miles from hotel
Estimated Taxi Fare: $70.00 (one way)
Shuttle Service: $30.00 one way/$60.00 round trip/ $12.00 for each additional person (SuperShuttle - 1-800-258-3826)
Metro (Subway): Metro does not have a stop at Dulles International Airport.
WMATA Metrobus: Take bus 5A to L'Enfant Plaza Metro Station (Orange, Blue, Yellow and Green Lines). Then take the Yellow or Blue Line Metro to Crystal City.

Driving Directions:
From IAD:
Take the Dulles Toll Road East approximately 16.6 miles to I-66 East. Take I-66 East approximately 7.3 miles to exit 75 (Rt. 110 South). Go approximately 3 miles. Rt. 110 South turns into Rt. 1 South (Jefferson Davis Hwy). Take Rt. 1 South (Jefferson Davis Hwy) to 4th traffic light (27th Street). Turn left at 27th Street, hotel will be on the left.

From Baltimore Washington International Airport (BWI)
Distance: 40 miles from hotel
Estimated Taxi Fare: $90.00 (one way)
Shuttle Service: $50.00 one way/$98 round trip/ $12 for each additional person (SuperShuttle - 1-800-258-3826)
Metro (Subway): Metro does not have a stop at Baltimore Washington Airport. You can take the MARC Train (weekdays only) or Amtrak to Union Station (Red Line), then take Metro from Union Station to Crystal City (Yellow and Blue Lines).

Driving Directions:
From BWI:
Take I-95 South over the Wilson Bridge into Virginia. Exit #177B (first exit off bridge), and follow signs to Rt. 1 North. Travel approximately 4 miles. When you see signs for Reagan National Airport get into the right hand lane. Turn right onto 27th street, hotel is on the left.

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Arlington, VA and Washington, DC

The 2013 Inaugural Advocate Leadership Summit will be held at the Hyatt Regency Crystal City in Arlington, VA. Just minutes from Reagan National Airport and downtown Washington, DC, the Hyatt Regency and surrounding area will offer many things to make your visit enjoyable!

Getting Around Town:
The Hyatt is located in Arlington, VA. Many attractions and restaurants are within walking distance of the hotel. Please visit the hotel concierge desk located in the Hyatt lobby to receive directions and walking maps of Arlington and surrounding areas.

Public transportation is offered through the Washington Metro Transit Authority via public bus and Metro service. The closest Metro stop to the Hyatt is the Crystal City stop on the Yellow and Blue lines, which is approximately six blocks away. If you do not want to walk, Hyatt offers a complimentary shuttle to and from this Metro stop. Shuttles leave from the Hyatt every 30 minutes. Full Metro and public bus schedules and map information can be viewed on the WMATA website.

Taxis are available at the hotel 24 hours a day. All taxi cabs now follow the metered system for fare explanation and payment.

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Things to Do

Arlington offers a wide variety of attractions close to the Hyatt. Shopping in Pentagon City, dining in Old Town Alexandria, a visit to Mount Vernon and much more are offered in and near the Hyatt. For a full list of attractions, please visit the Arlington Visitors Bureau website.

Washington, DC offers a diverse range of attractions. From sporting events to the Smithsonian museums, a wide array of cuisine and dining options and the many gems found in Washington DC's diverse neighborhoods, there’s something for every visitor. For a full list of current attractions, dining choices and all things happening in DC, please visit the Washington D.C. Convention and Visitors Association website.

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