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The Project LEAD® Institute is a six-day intensive science course designed for the lay public to train breast cancer advocates. The course covers the basics of cancer biology, genetics, epidemiology, research design and advocacy, and provides a foundation of scientific knowledge upon which participants can strengthen and empower themselves as activists. Taught by renowned research faculty, this is a unique opportunity for those interested in learning more about working as an NBCC research advocate.
On March 24, 2023, the Food and Drug Administration (FDA) issued draft guidance on clinical trial designs for accelerated approval of oncology drugs. The draft guidance, unfortunately, does not advance a process that will result in drugs that save lives. It perpetuates approval based on the surrogate endpoint, progression-free survival (PFS), instead of prioritizing clinical trial designs that will show overall survival. It also fails to include trained patient advocates in the process.
Where NBCC stands on FDA reform and screening mammography recommendations.
The National Breast Cancer Coalition (NBCC) applauds the introduction of H.R. 549, The Metastatic Breast Cancer Access to Care Act, this week by Reps Andrew R. Garbarino (R-NY-02) and Kathy Castor (D-FL-14). The bipartisan legislation eliminates the arbitrary and onerous waiting periods for Social Security Disability Insurance (SSDI) benefits and Medicare coverage for those with metastatic breast cancer.
NBCC’s advocacy has resulted in more than $4 billion federal dollars for breast cancer research.
Breast cancer accounts for nearly a quarter of all cancers in women worldwide.
The DOD BCRP was created as a result of NBCC’s “$300 Million More” campaign to increase federal funding for breast cancer research.