Advocate Leadership Summit

About the Annual Advocate Leadership Summit

Save the date! The 2025 Summit will be held May 3-5 at the Park Hyatt in Washington, DC, followed by Lobby Day on Capitol Hill on May 6.

Registration will open in fall 2024.

For more than 30 years, NBCC has been a leader in supplying the education, tools and training that empowers breast cancer survivors and other advocates to make their own informed decisions and to take leadership roles in clinical, scientific, policy and legislative decision-making that affects breast cancer research, health care, and public policy.  

NBCC’s Advocate Leadership Summit is an annual gathering of breast cancer advocates from across the country and around the world. Participants attend sessions on the latest scientific research, training in effective advocacy strategies and presentations by respected researchers in the field, grassroots leaders from around the country and prominent public policy experts. The Advocate Leadership Summit is the premier breast cancer advocacy event that attracts women and men from the US and other countries. Attendees include breast cancer survivors, caregivers, patient advocates and many others who are affected by breast cancer.

2024 Advocate Leadership Summit and Lobby Day Recap 

From May 4-6, NBCC hosted our annual Advocate Leadership Summit in Washington, DC.

In a series of workshops, advocates listened, learned, and questioned prominent breast cancer researchers about a range of important topics, including diversity in clinical trials, the state of the breast cancer vaccine landscape, the importance of strong drug approval standards, patient-focused oncology research, tools for understanding research protocols, and study designs.

Political workshops supplemented advocates’ political toolkits with topics including how advocacy on Capitol Hill has changed since COVID, how women’s healthcare will shape the 2024 election, the ways in which you can craft effective messaging, and a helpful introduction to the legislative process for new advocates.

During the plenary sessions:

  • NBCC Board of Directors Member Marylinn Minor led Dr. Marianne Hamilton Lopez of the Duke-Margolis Institute for Health Policy, Aaron Pattillo of I-MAK, Nicole Rapfogel of the Center for American Progress, and NBCC Board of Directors Member Judi Hirshfield-Bartek in a discussion of drug costs and how to advance equitable high-quality care in oncology.
  • NBCC Board of Directors Member Christine Carpenter moderated a panel from Drs. Cyrus Ghajar of Fred Hutchinson Cancer Research Center, Keith Knutson of the May Clinic, Alana Welm of the Huntsman Cancer Institute, and NBCC Board of Directors Alternate Michele Atlan on the importance of the Artemis Project and an update on the critical research being done.
  • Larissa Korde (National Cancer Institute), Preeti Narayan (US Food and Drug Administration), Nicole Seagriff (NBCC Team Leader), and Brooke Wilson (Kingston Health Sciences Centre) joined NBCC Board of Directors Member Bonnie Anderson for an in-depth look at the ways in which research can and should be designed to answer the questions that matter most to patients.
  • Women’s health consultant Joanne Howes spoke with NBCC Team Leader Amy Fogel, Linda Goler Blount (Black Women’s Health Imperative), Lauren Hutchinson (The Tarrance Group), and Celinda Lake (Lake Research Partners Inc.) about the 2024 presidential election and the ways in which women’s health issues may impact the landscape.

On May 7, NBCC advocates mobilized in a powerful Lobby Day on Capitol Hill. More than 130 advocates representing 30 states held meetings with lawmakers and staff, securing 6 new bipartisan cosponsors for the Metastatic Breast Cancer Access to Care Act and additional Senate supporters for the Department of Defense Breast Cancer Research Program.